Parenthood, disability, ethics, and the crooked way of grace
Currently Browsing: osteogenesis imperfecta

Bless Those Who Curse You (& Don’t Call Them Eugenicists, Moral Monsters, or Murderers)

A friend recently sent me an article written by an Australian man who has the same bone disorder I do (osteogenesis imperfecta, or OI). Writing for the Christian journal First Things, Philip C. Burcham tells a compelling story of his family’s OI hist...

The Slippery Nature of Suffering: How Do We Decide What Makes Suffering Unbearable?

In Lois Lowry’s novel The Giver, young Jonas knows nothing—absolutely nothing—about pain and suffering until after his twelfth birthday. Jonas’s community (which exists in a post-apocalyptic future) is safe and efficient. Not only do th...

Do I Hate My Life? No. But I Do Hate My Disability.

Thomas, a reader who has the same bone disorder I do (osteogenesis imperfecta, or OI) commented on my contention in Friday’s post that I hate OI. Thomas wrote, “It’s really hard to read this and not feel sad for you…To me hating an ...

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