Parenthood, disability, ethics, and the crooked way of grace
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On a Difficult Anniversary, Making Room for the Better Stories

I will always remember that terrible June day in 2009. But I’ve reached a point now where I can breathe a little easier than I used to. I can think of all the other stories I can tell about my girl, and that she can tell about herself, stories that matter just as much as the story of her accident, if not more.

On Assisted Suicide and Chronic Pain, Sex and Prayer, DNA and Ice Buckets: Top 10 Posts of 2014

The 10 most-read blog posts of 2014—a list that provides a good snapshot of topics I regularly cover, such as genetics, chronic pain, medical decision making, parenting, and Christianity.

Not All Pain is Gain

Not all pain is gain. Pain is not always fixable. This is the truth. But it is not a hopeless truth.

No Easy Choices When It Comes to Genetics, Disability, and Reproductive Decisions

TIME Magazine online picked up my post from earlier this week on whether a parent might regret bearing a child who inherits a difficult, painful genetic disorder. (TIME.com has a cooperative agreement with Patheos that allows them to select several Patheos posts every week for publication on their site.) The post is being shared widely, by [Read More...]

Can You Regret Having a Child Who Inherits Your Genetic Baggage?

But while I sometimes wish I could have spared my daughter her genetic fate, I’m also profoundly grateful that it was not in my power to decide what kind of kid I would get.

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