Parenthood, disability, ethics, and the crooked way of grace
Currently Browsing: genetic disorders

No Easy Choices When It Comes to Genetics, Disability, and Reproductive Decisions

TIME Magazine online picked up my post from earlier this week on whether a parent might regret bearing a child who inherits a difficult, painful genetic disorder. (TIME.com has a cooperative agreement with Patheos that allows them to select several Patheos posts every week for publication on their site.) The post is being shared widely, by [Read More...]

Resemblances

“Look at those fingers! And her toes! So long and skinny…just like yours, Ellen.” I don’t recall how many people uttered those words during the early weeks of my firstborn’s life. Maybe only two or three. But I felt bombarded by this innocent observation. Shortly after my daughter’s birth, my husband, who accompanied her for [Read More...]

Why Do Parents Choose to Screen for Disabilities?

Imagine you are standing at an intersection with your child, waiting for a walk light so you can safely cross the street. The traffic light turns red, the “walk” sign lights up, you grab your child’s hand, and just as you are about to step off the curb, a mysterious voice from above says, “Stop! [Read More...]

College Hookup Sex is Built on a Troubling Ethic of Achievement at Any Cost

After reading Kate Taylor’s New York Times article on the culture of casual hookup sex at elite colleges, I had to fight the urge to call my two daughters into the room issuing dire warnings of the world that awaits them in college. The world Taylor ...

When Conflicting Stories Are Both True: Illness, Identity, and the Tales We Tell of Living with Disability

In his vast and gripping book, Far from the Tree: Parents, Children, and the Search for Identity, journalist Andrew Solomon discusses the two narratives that we use when we talk about life with disability in general, and/or with particular conditions, ...

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